Patients

Each patient has their own story. Here we share 2 with you from the psychology department.

Alissa had a Left Temporo-Parietal Occipital Ebendymoma. Her surgery, chemotherapy, radiotherapy and ongoing medical appointments have left her with gross motor difficulties and poor vision. This has meant that at school she finds it difficult to pay attention, has difficulties with her memory and consequently finds it hard socially.

Robbie’s Rehab’s objectives for Alissa:

To assist in developing friendship at Secondary school. To assess Alissa’s thinking skills. To conduct a workshop with her teachers. To conduct a workshop with her fellow pupils.

Alissa says:

“It can be really hard for me at school, especially in PE/Games lessons as I can’t see the ball and I don’t have great balance either! Last year, some people in my class would groan when I was put in their team – that really upset me. But I do enjoy sports though, particularly swimming, golf and climbing!”

Alissa’s family say:

“Alissa is going to have a lot to deal with as she goes through her teenage years because of her differences, so it is great that there is a service there to help and it provides reassurance for those children and their families.

The thought of having someone to support Alissa where she needs it at school (which we didn’t realise would be available), is so important and is such a relief. The Robbie’s Rehab team held a lunchtime workshop with staff to help make them aware of Alissa’s brain tumour, what is realistic for Alissa and ways to support her. 

It’s brilliant to know there is a service that can support the whole family as time goes on.”

Jack had a Medulloblastoma and Hydrocephalus necessitating surgery, chemotherapy, craniospinal radiotherapy and ongoing medical appointments. This has left Jack with right-sided weakness and Facial Palsy. Consequently Jack has had to reduce his timetable at school and has had to learn to write with his left hand.

Robbie’s Rehab’s objectives for Jack:

To help Jack make sense of his hospital journey. To manage worry and angry feelings at bedtime. To build jack’s confidence that he can become more active again. To assess his thinking skills.

Jack’s family say:

 “Robbie’s Rehab is an amazing service that understands that children who have had a brain tumour need continued care after the initial treatment. We first saw the Robbie’s Rehab Physiotherapist in Spring 2017. Physio really helped Jack through his physical recovery and to reach his goal of riding his bike, which was really important to him as he has always loved being outside on his bike. Psychology helped us to find out what Jack went through and how things affected him, and to be able to help them with that (Jack isn’t having nightmares anymore!) It’s also helpful to be able to untangle things in your own mind and go through them step by step and think about what from the whole experience has affected you as a parent”

And one story from Physiotherapy:

Drew’s (name changed) parents say:

“Robbie’s Rehab has been a huge support and confidence-builder for our son. He has managed to return to the strength and balance needed to return to rugby and everyday activities. He has made phenomenal progress under the guidance of our Robbie’s physio programme. This has given us the confidence to push him to the next stage of fitness”

Drew (name changed) says:

“Robbie’s Rehab helped me with my balance, overall fitness, skipping and running. I’ve started rugby again!”